How will people know about my Advance Decision?

It is important that you tell people you have made an Advance Decision. If your healthcare team does not know that you have one, they will not know how you wish to be treated and will not be able to follow the instructions in your Advance Decision.

There are several things that you can do to make sure people are aware of your Advance Decision:
  • Ask your GP to keep a copy of your Advance Decision with your medical records.
  • If you live in England, ask your GP to add the fact that you have an Advance Decision to your Summary Care Record. A Summary Care Record is an electronic record of important information about your health that is accessible to any healthcare professional 24 hours a day.
  • Give a copy of your Advance Decision to anyone who is regularly involved in your care. This could be, for example, a consultant, district nurse or social worker.
  • Give a copy of your Advance Decision to your friends and family members.
  • You can order a wallet-sized Notice of Advance Decision card from Compassion in Dying, which you can keep on your person in case of emergency.
  • Speak to your GP about what local arrangements are available to record your wishes. For example, some Ambulance Trusts will hold copies of people’s Advance Decisions if they are near the end of life.
  • Order a free ‘bottle’ from Lions Clubs International to keep a copy of your Advance Decision in the fridge. Paramedics should know to look for the Lions symbol when entering someone’s house and to check the fridge for the container. To order call 0845 833 9502.